A Mum's Journey with Dyspraxia

Drooling…

on July 27, 2012

When you say the word drooling, most of you would think “baby”… but with those of us with apraxic/dyspraxic children drooling is a massive word that is part of our day to day life.

I remember when Kaden was a baby, he dribbled more than the “average” baby, we always thought he was just teething, all the time!  As he got older, although it seemed to improve slightly, unfortunately he continued to drool excessively.  I had always hoped it would get better with time.  Kept telling myself, once he gained control over the muscles in his mouth he would get better… he is now 6 1/2yrs and we are still waiting. 

It makes me really sad for him, kids look at him funny, like he is “special” or dirty.  He has even experienced adults looking at him strangely or pointing out to me that he is “dribbling” (like I didn’t notice)!  He must hate it, his chin and neck sometimes gets red and looks sore, his top gets all wet and he must feel “different” for yet another reason (as if not being able to talk wasn’t enough to deal with).

Things we have tired… bibs, bibs and more bibs!  But eventually they get to an age where they don’t want to wear a bib so we moved on to sports head bands but around his neck.  They don’t look too bad and are very absorbent so generally one will last all day.  Downside is they aren’t cheap and you need at least 4 so you can rotate them through the washing. And of course he is wearing something “extra” that other kids don’t.

Medically speaking the only thing we have tired is Scopoderm Patches.  They are a “travel sickness” patch with the main side effect, “dry mouth”.  They are a small patch that you stick to the skin behind your ear.  Kaden hated it!  His skin reacted to the patch and he was consistently playing with it.  And with the dose we tried, it didn’t seem to help enough anyway.  http://www.netdoctor.co.uk/digestive-health/medicines/scopoderm-tts.html

A while ago I discussed the drooling with Kaden’s pediatrician, he had suggested trying the Scopoderm but other than that the next step would be to think about surgery.  This is something I have been seriously considering as Kaden gets older.  But is a massive decision.  I don’t know much about what is involved in the surgery yet but have asked his pediatrician to refer Kaden to an ENT (Ear Nose Throat) specialist so we can find out more details on what is involved.  I have found one website that details the different surgeries for drooling, which has at least given us ideas on what to ask and what we don’t want.  http://emedicine.medscape.com/article/879271-overview

I will keep updating about this one, it is very scary to think of Kaden having surgery but if it is the only answer then what else can we do.  I don’t want him to have anything else to deal with in the “social” word.  He is going to battle enough with the lack of speech, if we can do something to help any part of his disability, shouldn’t we do it?

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7 responses to “Drooling…

  1. Lucy Wilkinson says:

    Hi Tracey. We’ve started a blog too. Here’s the link http://dyspraxiadcd.wordpress.com/. We’ve included a link to your blog. Cheers! Lucy

  2. Katie says:

    Hi Tracey, my boy’s a drooler, too. He’s 7.5yrs old, and awaiting assessment for dyspraxia. We’ve tried so many medications, often with horrid side effects, and have now been offered surgery. He has reached an age where he tells us that he wants his drooling to stop, and he is certainly being made to feel different at school by his peers. It does feel scary to be considering surgery, but if it works then it has to be worth it.

    • Thanks for your comment. It is interesting hearing that your son at 7.5yrs “whats his drooling to stop”. It must be just awful for them! Kaden has an appointment with an ENT Specialist on 11 October to find out more details about surgery. I have been investigating if diet can help, nothing so far but I will post if I have any luck!

  3. Jane Campbell says:

    Hi Tracy
    I found your blog by pure surfing the net for Apps for dyspraxia……….and I think you and I were emailing each other a couple of years ago. Live on the Gold Coast , and have a 7yr old daughter with Dyspraxia, and we are from Chch too! I lost all my email contacts when my PC died, but I can be contacted at details below.

  4. website says:

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    He was once entirely right. This publish truly made my day.
    You can not believe simply how so much time I had spent for this information!

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